VOR’s mission is to advocate for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD).
Testimony from one of our members: As a personal member of VOR, I receive national weekly news and views through an email newsletter. State-by-state articles are presented which highlight such issues as the opposition to sheltered workshops and the closure of state institutions, such as the Ann Kiley Center, etc. The information contained in these newsletters is eye-opening and serves as an educational and advocacy tool for parents and guardians. VOR lobbies nationally on behalf of individuals with significant developmental disabilities and keeps you abreast of the latest legislation. They are probably the only voice we have to fight for the right of our family members to choose to live in facilities, such as the Ann Kiley Center. I strongly encourage you to check out this organization and to consider joining it. Individuals investing in VOR through membership dues and donations will receive the Weekly E-Mail News Update, a print newsletter (The Voice) three times a year, an invitation to an Annual Conference and Initiative in Washington, D.C., Action Alerts, individual advocacy, and legislative and legal advocacy. Membership is $45.00 annually. For more information, you can contact the local office through firstname.lastname@example.org, or by calling the toll free number (877) 399-4867. The local office’s address is: VOR, 836 S. Arlington Heights Road #351, Elk Grove Village, Illinois 60007. You can also donate or join via their web site, which is www.vor.net. ---Henrietta Reder, Friends of Ann Kiley Center, Board Member
IL-ADD: Illinois League of Advocates for the Developmentally Disabled The Illinois League of Advocates for the Developmentally Disabled (IL-ADD) was founded to unite the efforts of separate parents groups from State Operated Developmental Centers (SODCs) and private facilities for the care of the developmentally disabled in Illinois. As an “umbrella group” IL-ADD’s Board of Directors was composed of the presidents of the parents groups and other interested individuals. In the belief that an organization of all the people in the state of Illinois with an interest in protecting the developmentally disabled would have a stronger, more effective voice than each separate group the founding members met in Matteson, Illinois in 1993 to create the organization based on the following guiding purposes: To protect and advance the interest of the developmentally disabled in Illinois; To support new and existing legislation in aiding and benefitting the developmentally disabled; To foster the development of programs in their behalf; To encourage research on related issues; To provide a forum for discussion of problems; To develop a better understanding by the public of the developmentally disabled; To cooperate with all public, private and religious groups in the furtherance of these ends; To accept and receive funds for the accomplishment of the above purposes.
House Bill 2665 - State Guardianship Training Program - NOTE: This bill was passed on June 25, 2017.) Every year or two, a bill designed to curtail or limit guardianship is introduced in the General Assembly. Sometimes the bills are very extreme. Sometimes less so. But there is always an undercurrent of anti-guardianship ideology. This year, the bill is HB2665 - State Guardian-Training Program. It was introduced in the House on February 8 and passed there on April 26. Arrived in the Senate the same day and passed there on May 31 with Senate Amendment 3. Sent back to the House for their concurrence with the Senate's amendment. As of June 7, no action in the House. Essentially, HB2665 states that the Office of the State Guardian (OSG) will develop a training program that outlines the duties/responsibilities of a guardian and the rights of a person with a disability in a guardianship proceeding. The guardian will be required to complete the training program within one year of the effective date of appointment, and it will be so stated in the probate court's appointment order. Counties with a population of 3 million or greater (i.e., Cook County) are exempt from this requirement. OSG is required to consult with the courts, various guardianship and advocacy organizations, and family members with experience as guardians. Interestingly, there is no mention of consulting with federal Medicaid law, the Americans with Disabilities Act (ADA) or the Supreme Court's Olmstead Decision. Nor is there anything said about researching the legal concepts of fiduciary duty or legal capacity of a mentally incompetent person. The effective date of this bill is one year after becoming law. Frequently asked questions. - Q: Does this apply to those of us who are already guardians? - A: Probably not. The bill does not specifically address this question, but probably not practical for the probate courts to issue amended appointment orders to all existing guardians. - Q: How specific is this bill as to what the training program will consist of. - A: Not very specific at all (see above). The guidance to OSG is quite open-ended. Very little in the way of legislative controls. The bill may be found at the Illinois General Assembly's website: http://www.ilga.gov/